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The wfh has developed interactive and informative visualizations to summarize annual global survey data These achievements mark a strong step forward in improving lives for people with bleeding disorders around the world. This system allows for easier and faster analysis and report creation.
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The report on annual global survey (ags) includes demographic and treatment data, providing a global snapshot of people with hemophilia, von willebrand disease, other rare factor deficiencies, and inherited platelet disorders around the world. In 2024, the world federation of hemophilia (wfh) made remarkable progress in advancing global care and access Our innovative spirit was once again on show in 2023
We launched the gene therapy registry (gtr) and expanded the world bleeding disorders registry (wbdr) to include people with von willebrand disease (vwd)
We also launched the shared decision making (sdm) tool for hemophilia treatment. Anyone attempting unauthorised access will be considered for appropriate legal action. The wfh annual global survey data includes selected demographic and treatment data on people with hemophilia, von willebrand disease, rare factor deficiencies, and inherited platelet disorders throughout the world. The wfh 2023 annual global survey (ags) highlights progress in care for #bleedingdisorders worldwide
With responses from 119 countries, a 2% rise in identified cases, and new data on advanced therapies, this report offers critical insights for advocacy and improved care. The wfh annual global survey (ags) data includes select demographic and other data on people with hemophilia, von willebrand disease, rare factor deficiencies, and inherited platelet disorders throughout the world. The wfh 2023 annual global survey (ags) highlights progress in care for #bleedingdisorders worldwide. The data used in this study is derived from the wfh ags, a voluntary survey of the 147 wfh national member organisations
